© CLIMB Project, University of Cambridge

Patient and Public Involvement (PPI)

Mrs Linda Jones

Patient and Public Involvement Lead

Linda leads our PPI programme. She is responsible for the dissemination of information about
data research and, most importantly, seeking the views of patients and the public about information sharing and research.

 

Central to Linda's role is the development of prototype consent methods that are simple, tiered, cover a wide set of domains (e.g. from textual information to biological samples), are applicable across the NHS, and are capable of national use.

 

Linda also interacts with clinicians and other mental health service professional across the mental health trust, and contributes to ethics approvals and information-sharing agreements between the NHS and the University.

What is PPI?

 

INVOLVE, a national advisory group to support greater public involvement in healthcare research, defines Patient and Public Involvement (PPI) as “research being carried out 'with' or 'by' members of the public rather than 'to', 'about' or 'for' them”. 

 

The NHS commits:

  • to anonymise the information collected during the course of your treatment and use it to support research and improve care for others

  • to inform you of research studies in which you may be eligible to participate

 

Using these principles, the CLIMB team is committed to working in partnership with patients, carers and the public to optimise health data research and increase participation to mental health studies

What is PPI?

INVOLVE, a national advisory group to support greater public involvement in healthcare research, defines Patient and Public Involvement (PPI) as “research being carried out 'with' or 'by' members of the public rather than 'to', 'about' or 'for' them”. 

 

The NHS commits:

  • to anonymise the information collected during the course of your treatment and use it to support research and improve care for others

  • to inform you of research studies in which you may be eligible to participate

 

Using these principles, the CLIMB team is committed to working in partnership with patients, carers and the public to optimise health data research and increase participation to mental health studies

Ways we engage

Research Advisory Group

Our Research Advisory Group comprises six members of the public who advise on our research project. They help with all stages of the research from developing aspects of the research design through to disseminating the results.

Flyers and leaflets

We produce a range of materials for patients and clinicians which provide information about our project's aims and how to engage with us.  

Meetings & Events

We run and attend meetings for the public and clinicians to provide information about our project .  

Participation vs Engagement vs Involvement

Patients have important research ideas about how best to improve quality of life, manage symptoms, offer existing treatments, or develop new interventions.

Patient Led Research

Patients have important research ideas about how best to improve quality of life, manage symptoms, offer existing treatments, or develop new interventions.

In the clinic

We interact with clinicians to ensure that the project provides tools that actively improve the patient/clinician experience.

Have you ever used the NHS? Are you aged 16 or over? If so, MHDSS want to hear your views on mental health data sharing. ​

Mental Health Data Science Scotland (MHDSS) is a collaboration between The University of Edinburgh, The University of Glasgow and The University of Aberdeen.​

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